Leadership
1015 Walnut Street
Suite 401
Philadelphia, PA 19107
1015 Walnut Street
Suite 401
Philadelphia, PA 19107
- Assistant Director of Research
- Assistant Director, Primary Care Research Fellowship
Continuing Care for Childhood-Onset Complex Conditions
Mission
Optimizing the care and defining best practices for the care of teens, adults, and older adults with complex childhood-onset conditions from transition to lifespan care. As part of this goal, we need to expand the disability competency of the interprofessional, collaborative workforce to further a person-centered culture in healthcare.
Collaborators
- Mary Stephens, MD, MPH, FAAFP (Lead)
- Allison Casola, PhD, MPH, MCHES
- Nethra Ankam, MD
- Jane Tobias, DNP, RN, MSN, CPNP-PC
- Alex Fossi
- Adel Herge, OTD, OTR/L, FAOTA
- Wendy Ross, MD
- Sabra Townsend
- Karin Roseman, MSW
Community Partners
Special Olympics Pennsylvania, Down Syndrome Association of Delaware.
Themes
Third-year clerkships, fourth year electives, disability, curriculum development, community collaboration & education on IDD (Intellectual and Developmental Disabilities), participation with local, regional, and national IDD organizations, interprofessional workforce development.
Project List
Jefferson Continuing Care Program (JCCP) - a primary care medical home for teens and adults. JCCP serves as the home base for clinical activities for Mary Stephens.
Jefferson Center for Autism and Neurodiversity - Alex Fossi, Jane Tobias, Wendy Ross, Sabra Townsend.
- Vizient data analysis - NEJM Catalyst (led by Jon Gleason)
- Standardized patients with autism in collaboration with SON
- Ongoing evaluation of new approaches to healthcare and the medical-home model for care of neurodiverse individuals
- Advocacy and policy
- Patient and family experience
National Curriculum Initiative in Developmental Medicine (NCIDM)
- Grant ends June 2021 - ongoing analysis of data and continued curriculum development
- Study Team: Mary Stephens, Nethra Ankam, Allison Casola
- Special Olympics Selective (MS1-4 and interprofessional involvement) and third year clerkship focus on IDD and physical disabilities through PDAT (Patients with Disabilities as Teachers) and the NCIDM toolkit
OT/ID & Dementia – Jefferson Elder Care
E. Adel Herge, OTD, OTR/L, FAOTA
- Occupational therapy clinical and consultative services to individuals with ID and memory loss, Alzheimer’s disease or other dementias and their caregivers
- Skills to Care®ID
- Home Safety Assessments
- Community/national education efforts · National Task Group
- American Academy of Developmental Medicine and Dentistry
Down Syndrome Medical Interest Group
Down Syndrome Medical Interest Group USA - Potential for interdisciplinary clinic with JCCP/OT
Undergraduate Medical Education Director for Rehabilitation Medicine, Wellness Thread Director for JeffMD, Co-Faculty Lead of the Jefferson Health Mentors Program, Disability Education Innovation Initiative Committee Chair - Nethra Ankam
Evaluation of JeffMD curriculum from the standpoint of the Core Competencies on Disability for Health Care Educationto determine gaps in medical student education.
- Use of Critical Disability Theory to look at the presence or absence of ableism in the JeffMD curriculum
- Curriculum development to mitigate any ableism or gaps found.